We know how difficult this battle is with Castleman disease and will do our best to provide our patients and their loved ones with as much information as possible, while also providing tools and resources. On this page you will find additional resources that might benefit you on your journey with Castleman disease.
DISCLAIMER: The CDCN serves as a collaborative research and support network. We are happy to connect patients and loved ones with expert Castleman physicians; however, patients must have insurance as the CDCN cannot provide financial assistance related to healthcare coverage. We DO NOT provide any form of financial assistance.
The maker of siltuximab, the only FDA-approved therapy for iMCD, this global biopharmaceutical company focused on oncology and rare disease provides funding for critical CD community meetings. Are you on SYLVANT® (siltuximab) therapy for idiopathic multicentric Castleman disease (iMCD)? If so, we’ve got great news! We’re thrilled to introduce you to Recordati Rare Diseases Patient Liaison (PL) Program, designed to offer you one-on-one support at ZERO additional cost. Patients currently on sylvant can access additional support resources here and more information about SYLVANT® (siltuximab) here.
Use tools from Global Genes and trusted community partners to increase the resources available to you.
The mission of Angel Flight East is to provide free air transportation to qualified patients and their families by arranging flights to distant medical facilities, delivering supplies to disaster areas, and reuniting families during desperate times.
Angel Flight East (AFE) is a 501(C)(3) nonprofit organization dedicated to serving the community by facilitating free air transportation for children and adults with medical conditions who need to get to treatment far from home. The CDCN has partnered with them to help ensure that we can work with our patients and get them the care they need.
We are working in collaboration with Paradigm Medical Communications to bring educational materials to oncology nurses. There are live symposiums designed to address the educational needs of oncology nurses, including advanced practice nurses (APNs) and registered nurses (RNs). It will also benefit other clinicians who manage patients with Castleman disease. You can learn more about the upcoming live events here.