Join the Fight

We are only as strong as our community. Join the fight and, together, we will end Castleman disease.

The CDCN was founded by the principle that patients should be at the center of the research and clinical care network. The key to this disease is within each patient, and by collaborating with the community we can unlock the unknowns and achieve our mission to improve survival for all patients. Please consider donating, attending an event, donating samples and data to research, or volunteering with us!

Below are the ways you can join in the fight and help us find a cure!


    • To help advance our life-saving research please consider donating. Every dollar matters and with your continued commitment we know that we will be able to find a cure for our Castleman patients.

Annual Events

    • The CDCN holds or participates in several events throughout the year. Each event is a way to bring together the Castleman community, raise awareness for this disease, and fundraise to help advance our life saving research.

Get Involved

    • The CDCN was founded by the principle that patients should be at the center of research and the clinical care network. There are many ways that you can get involved with the CDCN and help us find a cure.

Chasing My Cure

    • CDCN’s co-founder, Dr. Fajgenbaum, recently completed a powerful memoir about his journey from being a medical student and former college athlete to becoming a patient with a rare disease who spearheaded the search for a cure as a physician and researcher—and became a champion for a new approach to medical research.

Castleman Warriors

    • The Castleman Warrior program was designed as a way to bring patients and loved ones together to unite them in their ability to raise awareness and funds for the CDCN.

CDCN Store

    • Help us raise awareness about Castleman disease by purchasing Official Castleman Disease Collaborative Network merchandise!
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