Annual Events

Our annual events are a way to bring together the Castleman community, raise awareness for this disease, and fundraise to help advance our life saving research.

We can’t do this alone!

We strive to support patients and loved ones, educate our community, empower all those affected, and fundraise to help advance our life saving research by holding annual events that bring together our Castleman disease family. The CDCN holds or participates in several events throughout the year. More information on these events can be found below:

Patient & Loved One Summit

    • A core mission of the CDCN is to support, empower, and educate patients and loved ones affected by CD. One of the best ways we do that is by holding our annual Patient Summit that brings together the CD community for a weekend of education, insight on your battle with CD, and friendship.

Quest for a Cure

    • Our annual Quest for a Cure fundraiser helps us achieve our goal of turning promising research into permanent cures. At this event we celebrate the past years accomplishments and talk about the goals for the new year.

World Castleman Disease Day

    • World Castleman Disease Day is July 23rd.  It is an amazing opportunity for Castleman disease advocates worldwide to come together in the fight against Castleman disease to continue to support patients currently living with Castleman disease and to remember and honor those patients who we have lost.


    • The Driscoll family holds this annual event in memory or their daughter Elyse, who lost her battle against Castleman disease. All the proceeds from this event are donated back to the CDCN to support our life saving research.

Million Dollar Bike Ride

    • The CDCN has an annual event in Philadelphia, each year, Team Castleman Disease rides in support of The Penn Medicine Orphan Disease Center’s “Million Dollar Bike Ride”. Team Castleman Disease rides to raise funds to further our research in our quest for a cure.
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