World Castleman Disease Day is July 23!
What is World Castleman Disease Day?
World Castleman Disease Day is recognized each year on July 23 by the entire CD community — patients, loved ones, physicians and researchers. It marks a time when everyone unites to build greater awareness for Castleman disease, to support patients who are living with this disease, and to remember those we have lost.
Our 2024 Campaign
For World Castleman Disease Day 2024, the CDCN is shining a spotlight on the difficult road to diagnosis faced by our patient community. Because CD is rare, and because it mimics so many other diseases, it can take several weeks, months, or even years before patients receive an accurate diagnosis. Many become critically ill, and without a diagnosis, their medical teams cannot prescribe any of the potentially lifesaving treatments the CDCN continues to develop. Sometimes, by the time a diagnosis comes, it is too late.
Throughout July, the CDCN is building awareness about the diagnostic odyssey faced by Castleman disease patients by sharing their stories across our social media channels, and raising funds to develop a blood test that can accurately identify CD and get lifesaving treatments to patients faster.
As a nod to the date of World CD Day on July 23 — 07.23 — we are encouraging donations of $7.23, $72.30, and $723.00. Every dollar accelerates our research!
Make a Gift in Honor of World CD Day
If you would like to make a gift, please text CDDAY2024 to 41444, click on the link below, or use our QR code. Thank you so much for your support!
How to Participate in World CD Day
There are numerous impactful ways you can participate in World CD Day!
Raise Awareness: Share information about World CD Day and Castleman disease across your social media channels. You can create posts of your own, utilize the posts the CDCN is providing for the community, or share any of the posts appearing across the CDCN’s social channels.
Share Each Other’s Stories: Visit the CDCN social media pages to view and share personal videos from members of the CDCN community as they recount the difficult road to diagnosis.
Share Your Own Story: Create and post your own video for social media and tag the CDCN!
Post a Warrior Flex Photo: Share your powerful Warrior Flex photo to social media and if you would like, include your story.
Include Hashtags on Your Social Posts: #WorldCastlemanDiseaseDay #WorldCDDay #CDCN #Castleman #CastlemanDisease #CastlemanDiseaseWarrior #WarriorFlex #CureCastleman
Raise Funds: Encourage members of your network to make a donation in honor of World Castleman Disease Day! We are encouraging donations of $7.23, $73.20 and $723, all reflecting the date of July 23. Create your own social posts or share any of the posts appearing on the CDCN social media pages.
Join the ACCELERATE Registry: Help us learn more about Castleman disease by donating your medical records to our global patient registry.
Donate Biological Samples: Blood and tissue samples are essential to our research efforts. Every contribution brings us closer to understanding Castleman disease.
Dress in Blue and Wear Your CDCN Wristband: Paint the world blue on World CD Day by wearing blue and any Castleman gear you might have, including your wristband!
Tell Everyone: Spread the word about Castleman disease and World CD Day to your friends, family and colleagues!