Quest for a Cure

Help us chase our cure at this year’s

virtual Quest for a Cure Benefit

Thursday, November 11, 2021


The Castleman Disease Collaborative Network (CDCN) invites you to the 7th annual Quest for a Cure Benefit! This year’s virtual benefit will join together our largest group of patients, loved ones, and community members to raise awareness and funds for life-saving Castleman disease research. We have an exciting program planned for the evening that will include remarks from the
CDCN’s co-founder, Dr. David Fajgenbaum, physician-scientist at the University of Pennsylvania, and the author of Chasing My Cure: A Doctor’s Race to Turn Hope Into Action. To register for this event or become a sponsor click here.

Event Details

  • Quest for a Cure will be held virtually this year
  • Thursday, November 11, 2021, 8 pm EST
  • Registration is free to attend, to register click here.
    • Consider making a donation of $25 or more to help advance our life-saving research!
  • Special Guest Appearances
  • #FlexForACure Challenge (winner announced at the end of Quest)
    • Take a photo of you and your loved ones doing the Castleman Warrior flex and post to social media
    • Make sure to include in all your posts: #FlexForACure Join us for #QFAC2021 CDCN.org/Quest

Sponsorships & Registration

We hope you will support our life-saving immunology research to discover cures for Castleman disease, COVID-19, and related diseases by becoming a sponsor:

*All sponsorships should be in by October 24th, 2021 in order to be formally recognized during the event.

Royal Court Sponsor $50,000

  • Recognized throughout duration of event with logo or name overlay
  • Verbal acknowledgment at the start and end of event
  • Opportunity to pre-record 90s video of support with event coordinator
  • Listed as a sponsor on the slides at the start and end of event
  • Recognition on website and materials publicizing the event
  • Receive a Royal Court sponsor basket 
  • Purchase your sponsorship here.

Crusader Sponsor $25,000

  • Verbal acknowledgment at the start of event 
  • Opportunity to pre-record 60s video of support with event coordinator
  • Listed on slides at the start and end of event
  • Recognition on website and materials publicizing the event
  • Receive a Crusader sponsor basket
  • Purchase your sponsorship here.

Castleman Sponsor $10,000

  • Opportunity to pre-record 45s video of support with event coordinator
  • Listed on slides at the start and end of event
  • Recognition on website and materials publicizing the event
  • Receive a Castleman sponsor basket
  • Purchase your sponsorship here.

King Sponsor $5,000

  • Opportunity to pre-record 30s video of support with event coordinator
  • Listed on slides at start and end of event
  • Recognition on website and materials publicizing the event
  • Receive a King sponsor basket
  • Purchase your sponsorship here.

Knight Sponsor $2,500

  • Opportunity to pre-record 15s video of support with event coordinator
  • Listed on slides at start and end of event
  • Recognition on website and materials publicizing the event
  • Purchase your sponsorship here.

Bishop Sponsor $1,250

  • Opportunity to pre-record 10s video of support with event coordinator
  • Listed on slides at the start and end of event
  • Recognition on website and materials publicizing the event
  • Purchase your sponsorship here.

Noble Sponsor $500

  • Listed on slides at the start and end of event
  • Recognition on website and materials publicizing the event
  • Purchase your sponsorship here.

Individual Registration

 

 

We have included a few exciting developments below which we will highlight on November 11th:

1) Thanks to funding and support from our community, the CDCN recently discovered ANOTHER new treatment approach for Castleman disease and we have already begun trying it in patients without other options–with early success–including a case report published in The Lancet! Check out this link for more information. After 25 years without a single new treatment approach before the CDCN, this is the second new treatment approach that Dr. Fajgenbaum and the CDCN has discovered in the last 9 years. The first was sirolimus, which Dr. Fajgenbaum tested on himself and he described searching for in the national bestseller, Chasing My Cure: A Doctor’s Race to Turn Hope Into Action.   

2) In addition to discovering a new treatment, the CDCN has advanced over a dozen high-impact studies and published key papers including the first-ever diagnostic and treatment guidelines for unicentric Castleman disease, characterization of the most deadly subtype of Castleman disease, and taking the lead in defining cytokine storm through a paper in the New England Journal of Medicine.

3) We also continue to lead the biomedical community in drug repurposing — taking drugs approved for one disease and searching for additional diseases that they may be effective in. Through a partnership with the Chan Zuckerberg Initiative, we are mapping out the optimal paths to ensure that we are fully utilizing all of humankind’s drug discoveries for all diseases that they may be effective in.

4) The CDCN continues to push forward the CORONA (COvid19 Registry of Off-label & New Agents) Project, which we launched in March 2020 and is now the world’s largest effort to identify and track treatments for COVID-19. We have contributed to better understanding of COVID treatments, identifying promising treatments for large trials, and synthesizing evidence on effective approaches. 

About the CDCN

The CDCN’s innovative approach to transforming Castleman disease research over the last eight years has resulted in the first diagnostic criteria for Castleman disease, first treatment guidelines, first new drug target in 25 years, and the first clinical trial for patients with treatment-refractory Castleman disease. This work has been profiled on Good Morning America, New York Times, CNN, Philadelphia InquirerNPR Fresh Air, and the Lifetime TV NetworkThe CDCN has also partnered with the Chan Zuckerberg Initiative to expand the CDCN’s approach to research to advance cures for other rare diseases. 

More Information

  • Prefer to send a check by mail? Make out to “CDCN” (Castleman Disease Collaborative Network), notate ‘Quest for A Cure,’ and send to Castleman Disease Collaborative Network, PO Box 3614 Paso Robles, CA 93447
  • Questions? Email quest@castlemannetwork.org or call (610) 304-0696
  • CDCN is a 501 (c) (3) nonprofit organization. All donations are tax-deductible in accordance with IRS regulations.

 

 

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