Patient and Loved One Summit

Our annual Patient & Loved One Summit brings together the Castleman disease community for a weekend of education, insight, and friendship.


The Castleman Disease Collaborative Network (CDCN) invites you to the 7th annual Patient and Loved One Summit! Our Summit joins together over 100 patients, loved ones, and community members for a weekend of education, insight, research updates, and friendship! The
CDCN’s co-founder, Dr. David Fajgenbaum, physician-scientist at the University of Pennsylvania and author of Chasing My Cure: A Doctor’s Race to Turn Hope Into Action, and other key members fo the CDCN team will Host this event. Join us for an amazing weekend!!

Event Details

  • Location: Philadelphia, PA
  • Friday, August 21, 2020 Summit Education Day
    • Check in begins at 7am
  • Registration will be available soon!
  • Travel Grant information will be available soon!
  • Saturday, August 22, 2020 Patient and Loved One Fun Day
  • MORE DETAILS COMING!!

The 6th Annual Patient & Loved One Summit was held on August 23-24 2019 in Philadelphia, PA! Over 100 patients and loved ones from around the world attended to learn more about Castleman disease, find support, and hear the latest research updates.

The agenda from the 2019 Patient & Loved One Summit can be found here.

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