Patient and Loved One Summit

The 2024 Patient & Loved One Summit is July 25-27th!

Join the CDCN’s co-founder, Dr. David Fajgenbaum and other key members of the CDCN team in Philadelphia, PA at the Study for two days of education, fun, and friendship.

This event sponsored by Recordati will be held in person with a virtual component. Patients and loved ones from around the world are invited to attend to learn more about Castleman disease, connect with a supportive community, hear about the latest research from our experts, and get more involved in our collective fight against CD. 

 

Our tentative agenda will include:

    • Thursday, July 25, 6:00 to 9:00 pm ET – Warrior Welcome Reception (Optional)
      • Informal welcome reception organized by Warriors with appetizers and a cash bar to meet and mingle with fellow CD community members
    • Friday, July 26, 9: 00 am to 4:00 pm ET – Patient & Loved One Summit
      • Full day of CDCN programming and events at the Study Hotel
      • Opportunity to donate blood and saliva samples for research
      • Breakfast and lunch will be provided
    • Saturday, July 27, 11:00 am to 3:00 pm – Community Fun Day (Optional)
      • Group activity will be hosted at Sunset Social on the Cira Green Rooftop.
      • Lunch, outdoor activities and programming will be provided!

This year’s event will take place at the Study University City Hotel, located at 20 S. 33rd Street in Philadelphia, PA, 19104. A block of hotel rooms has been secured for CDCN guests at a rate of $190/night. You can reserve your room in the event block here.

Please contact Madison Ahearn at madison@castlemannetwork.org with any questions you might have.

 

2023 Patient and Loved Ones marketing video.


Castleman Warrior Award Recipients

The Castleman Disease Collaborative Network is pleased to give out Castleman Warrior Awards annually to a Castleman disease patient, loved one, community member, researcher, and physician that has made the greatest impact on the lives of people with Castleman disease.

The winners have all made an impact through either research, patient care, support, advocacy, awareness, or fundraising. They embody the values of the Castleman Disease Collaborative Network of “patient focus, innovation, collaboration, impact with urgency, diversity, and commitment to people.”


 

The Castleman Disease Collaborative Network (CDCN) held its 10th annual Patient and Loved One Summit on August 11th and 12th, 2023! We had the opportunity to recognize the amazing efforts of individual members of our community Lisa Carleno-Patient of the Year, Stacey Gravina-Loved One of the Year, and Josh Brandstadter-Physician of the Year.

Patient & Loved One Summit session recordings are now available! If you couldn’t attend live, you can watch the 2023 recordings here:


The 9th Annual Patient and Loved One Summit was held virtually and over 200 patients and loved ones from around the world registered to attend to learn more about Castleman disease, find support, and hear the latest research updates.

2022 Session Recordings:


The 8th Annual Patient and Loved One Summit was held virtually and over 200 patients and loved ones from around the world registered to attend to learn more about Castleman disease, find support, and hear the latest research updates.

The agenda from the 2021 virtual summit can be found here.

2021 Session Recordings:


The 7th Annual Patient & Loved One Summit was held virtually on August 20-22nd. Over 200 patients and loved ones from around the world registered to attend to learn more about Castleman disease, find support, and hear the latest research updates.

The agenda from the 2020 virtual summit can be found  here.


The 6th Annual Patient & Loved One Summit was held on August 23-24 2019 in Philadelphia, PA! Over 100 patients and loved ones from around the world attended to learn more about Castleman disease, find support, and hear the latest research updates.

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