Patient and Loved One Summit

The 2024 Patient & Loved One Summit is July 25-27th!

Join members of the Castleman disease community in Philadelphia, PA at the Study for two days of education, insight, and friendship.


This event will be held in person with a virtual component. Patients and loved ones from around the world are invited to attend to learn more about Castleman disease, find support, and hear the latest research updates. The
CDCN’s co-founder, Dr. David Fajgenbaum, physician-scientist at the University of Pennsylvania and author of Chasing My Cure: A Doctor’s Race to Turn Hope Into Action, and other key members of the CDCN team will be the host of this event!


The Castleman Disease Collaborative Network (CDCN) held its 10th annual Patient and Loved One Summit on August 11th and 12th, 2023! We had the opportunity to recognize the amazing efforts of individual members of our community Lisa Carleno-Patient of the Year, Stacey Gravina-Loved One of the Year, and Josh Brandstadter-Physician of the Year. 

Patient & Loved One Summit session recordings are now available! If you couldn’t attend live, you can watch the 2023 recordings here:


The 9th Annual Patient and Loved One Summit was held virtually and over 200 patients and loved ones from around the world registered to attend to learn more about Castleman disease, find support, and hear the latest research updates.

2022 Session Recordings:


The 8th Annual Patient and Loved One Summit was held virtually and over 200 patients and loved ones from around the world registered to attend to learn more about Castleman disease, find support, and hear the latest research updates.

The agenda from the 2021 virtual summit can be found here.

2021 Session Recordings:


The 7th Annual Patient & Loved One Summit was held virtually on August 20-22nd. Over 200 patients and loved ones from around the world registered to attend to learn more about Castleman disease, find support, and hear the latest research updates.

The agenda from the 2020 virtual summit can be found  here.


The 6th Annual Patient & Loved One Summit was held on August 23-24 2019 in Philadelphia, PA! Over 100 patients and loved ones from around the world attended to learn more about Castleman disease, find support, and hear the latest research updates.

The agenda from the 2019 Patient & Loved One Summit can be found here.

Castleman Warrior Award Recipients

The Castleman Disease Collaborative Network is pleased to give out Castleman Warrior Awards annually to a Castleman disease patient, loved one, community member, researcher, and physician that has made the greatest impact on the lives of people with Castleman disease. The winners, who have all made an impact on the lives of patients with Castleman disease through either research, patient care, support, advocacy, awareness, or fundraising, embody the values of the Castleman Disease Collaborative Network of “patient focus, innovation, collaboration, impact with urgency, diversity, and commitment to people.”

Patient of the year

  • Lisa Carleno – 2023 recipient
  • Victoria Humphries- 2022 recipient
  • Yankee McKinnon- 2021 recipient
  • Alice Gorman- 2020 recipient
  • Frank Guarino- 2019 recipient
  • Raj Jayanthan- 2018 recipient
  • Ryan Hoke- 2017 recipient
  • Gary Gravina- 2016 recipient
  • Kim Driscoll- 2015 recipient
  • Jim Johnson- 2014 recipient

Loved one of the year

  • Stacey Gravina – 2023 recipient
  • Emma Begley- 2021 recipient
  • The Mabus Family- 2020 recipient
  • The Incorvia Family- 2019 recipient
  • Patty Prazenica- 2018 recipient
  • BJ Campbell- 2017 recipient
  • Mileva Repasky- 2016 recipient

Community member of the year

  • Ryan Dinsmore- 2021 recipient
  • Pete Fisher- 2021 recipient
  • EUSA Pharma- 2019 recipient
  • Glen de Vries- 2018 recipient
  • Mary Zuccato- 2017 recipient
  • Mary Guilfoyle- 2016 recipient

Researcher of the year

  • Dr. Sudipto Mukherjee- 2021 Recipient
  • Dr. Kazu Yoshikazi– 2020 Recipient
  • Dr. Chris Nabel- 2018 recipient
  • Dr. Ian Lipkin- 2018 recipient
  • Dr. Kojo Elenitoba- 2017 recipient
  • Dr. Megan Lim- 2017 recipient
  • Dr. Alexander Fossa- 2016 recipient

Physician of the year

  • Dr. Josh Brandstadter – 2023 recipient 
  • Dr. Corey Casper- 2022 recipient
  • Dr. Aaron Goodman- 2021 recipient
  • Dr. Eric Oksenhendler- 2018 recipient
  • Dr. Thomas Uldrick- 2017 recipient
  • Dr. Frits Van Rhee- 2016 recipient
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