UCD: The average length of survival after UCD diagnosis is greater than 10 years, and life expectancy is usually not changed by UCD.

MCD: The 5-year overall survival rate was 65% in a 2012 literature review. There is reasonable hope that the survival rates are currently greatly improved due to the new breakthroughs in treatment (such as anti-IL6 blockade). The CDCN is currently leading a global patient research study to collect data to update these numbers.


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