The CDCN is committed to supporting patients and loved ones through their experience with Castleman disease.
We have put together this resource section as way to bring together our most helpful information for patients and loved ones affected by Castleman disease.
- The Patient Toolkit is a 20-page booklet of information written specifically for patients and loved ones affected by Castleman disease. It is full of detailed information about Castleman disease and is especially useful for patients who are newly diagnosed.
- Our physician referral lists include doctors in the USA and around the world who we know to have significant experience treating Castleman disease patients.
- The diagnosis of Castleman disease can be scary and many people feel alone in this fight. Learn about ways to connect with other patients and loved ones affected by Castleman disease.
- This section includes more detailed information about Castleman disease than what is included in the Castleman disease section of our website. It is written for individuals who are searching for more extensive information after reading our main Castleman disease pages. In addition, patients & loved ones looking for full texts of recent key publications and research studies about Castleman disease can find them here.