Join us for the 2025 Patient & Loved One Summit in Philadelphia, PA on August 7-9, 2025.
Co-founded by a patient (who is also a doctor) trying to save his life and others, CDCN works across multiple fronts to fight Castleman disease - a complex, deadly affliction that's frequently misdiagnosed and difficult to treat.
Collaborate with us to create a ROADMAP for drug repurposing. The goal is to understand the state of drug repurposing in rare diseases and create a shared, free resource that will make it easier to pursue successful drug repurposing. Learn how you can join us in this important work!
The Castleman Disease Collaborative Network (CDCN) is dedicated to accelerating research and treatment for Castleman disease, supporting patients on their journeys, and revolutionizing biomedical research for countless other diseases.
By turning the old model on its head and building a truly unique approach, we have made incredible progress in a very short amount of time. But there is still so much more to do.
CDCN 10th Anniversary Impact Report
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Instead of raising funds and hoping the right researchers apply for them, we crowdsource what needs to be answered, recruit the best scientists, and fund the highest impact studies. It’s an approach that has pulled together a network of experts from across the globe.
Learn MoreWhen the co-founder is a patient and the disease can be deadly, there is no time to waste. The CDCN team is incredibly focused on finding what works and quickly discarding what doesn’t. And it shows in the results.
Learn MoreCastleman disease is a journey for patients and all those they love that begins with a difficult diagnosis followed by finding a specialist, choosing a treatment, recovering, and surviving.
