Patients & Loved Ones

The CDCN is committed to supporting patients and loved ones through their experience with Castleman disease (CD).


We strive to ensure that people living with CD are educated about their disease, feel connected to the community, have access to experienced physicians, are informed of research underway, and know how to join the fight! Whether you are a person living with CD or a loved one of a person affected by CD, we hope that you will leverage these resources and engage with the CDCN to find the best possible care and to help us find a cure. 


    • This section contains information for patients and loved ones affected by CD including our patient toolkit booklet, physician referral lists of CD experts around the world, support resources, and more extensive information about CD.

Help Find Your Cure

    • Join the fight against CD by donating blood and tissue samples for research, donating your medical records, joining the Castleman Warrior team, and contributing your ideas for CD research.

Faces of Castleman Disease

    • Meet some of the patients in our community and read about their courageous battles with CD.

Additional Resources

    • A collection of resources from other non-profit organizations for patients affected by rare and life-threatening diseases.

CDCN Connect

    • Join CDCN Connect, a private virtual community for connecting with one another and advancing a cure. CDCN Connect allows patients and loved ones to communicate, ask questions, provide support, and vote on upcoming research ideas. You must be a member of the CDCN patient and loved one community to join CDCN Connect.

Patient/Loved One Login

    • Log in or create an account to access all password-protected resources on our website.



Arrow Shape Facebook Instagram Twitter Youtube Play Arrow Left