ACCELERATE is the first-ever registry for Castleman disease patients. It’s a research study designed to help physicians and researchers better understand Castleman disease, uncover patterns in the disease, and improve treatment.
Help us learn more about Castleman disease.
Enroll in the ACCELERATE registry to donate your medical records to Castleman disease research.
What is the ACCELERATE Natural History Study?
The ACCELERATE registry is a research study and the first-ever global patient registry for Castleman disease. The goal of the registry is to combine medical data from hundreds of patients with Castleman disease so that researchers can discover patterns and clues that may help physicians better understand and treat Castleman disease. Patients from around the world can enroll online. Once enrolled, medical data is collected, de-identified to protect patient confidentiality, and entered into a database by the team at the University of Pennsylvania. Participation in the ACCELERATE registry is entirely voluntary. We hope that the registry will provide insights about Castleman disease and its possible treatments so that medical care of Castleman disease patients will be improved in the future.
How do I enroll into the ACCELERATE registry and donate my medical records to research?
Patients with Castleman disease and parents of children with Castleman disease can enroll here! Participation in the ACCELERATE registry is entirely voluntary. To be eligible for enrollment, patients must have had a pathology report suggest or mention “Castleman disease” and must sign an informed consent form online. Enrollment can be completed online in about 20-30 minutes at the link here. If preferred, patients can also enroll in the registry by telephone by calling 215-349-5713. Family members of deceased patients are also able to enroll into the registry.
If you have completed the ACCELERATE registration process and want to share feedback with us, please fill out this brief survey.