The CDCN has built relationships with corporate partners and other rare disease organizations with aligned values.
Chan Zuckerberg Initiative
The CDCN was awarded a grant from the Chan Zuckerberg Initiative, whose science program supports the science and technology that will make it possible to cure, prevent, or manage all diseases by the end of the century. CZI’s Rare as One Project supports patients to accelerate progress against rare diseases. We’re partnering with CZI to create a framework and tools to allow other rare disease organizations to follow our blueprint to find cures.
“A small but growing number of rare disease patient organizations are making progress in their disease areas with remarkable success,” said Tania Simoncelli, CZI Science Policy Director and Rare As One Project lead. “These efforts have resulted in the development of new disease models, diagnostic criteria, drug targets, clinical trials, and — in some cases — new approved therapies in remarkably short timeframes. Our goal is to scale these successes more broadly across the rare disease community.”