Leadership Team

Patty Prazenica

“Patty first learned about Castleman disease because she is my mother-in-law. When I was initially diagnosed with Castleman disease, she saw first-hand the challenges that I went through as a patient. It was an incredibly difficult time for our whole family. When I was finally feeling better and wanted to start the CDCN, she told me that she would love to help in any way she could. She felt that she could help make an impact by coordinating volunteers and through supporting patients. Before Patty, we were all hyper-focused on the science. While we tried to help patients when we could, there was no infrastructure in place to do this. Patty made a position for herself as Community Coordinator to help support patients and their loved ones. She was the leader in transforming the CDCN from a research organization that tries to help patients to being an organization that helps patients through research. We could not have accomplished even close to what we have accomplished without the work that she has done. She continues to help lead up Quest for a Cure and is involved in a million ways. She is an amazing grandmother and I am incredibly blessed to have her in my life.”

– Dr. David Fajgenbaum, Co-Founder & Executive Director of the CDCN

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