Warriors Ambassador Program

A global community of patients turning their experience into support, awareness, and action.

Built on action, connection, and shared purpose, Warrior Ambassadors are committed to supporting the Castleman disease community.

What It Means to Be a Warrior Ambassador

Being a Warrior ambassador is an active role. Our program is built on individuals who are committed to showing up, contributing, and helping move this work forward.

As part of the Ambassador Program, members are encouraged to:

  • Participate in monthly Ambassador Calls
  • Support and/or lead fundraising efforts
  • Help raise awareness within their communities
  • Advocate for patients and families
  • Collaborate on events and initiatives
  • Serve as a connector, bringing others into the community

This is a community built on action, connection, and shared purpose.



Meet Our Warrior Ambassadors

Our team of Warrior Ambassadors is made up of individuals within the Castleman disease community who volunteer with the CDCN to support and uplift others impacted by the disease. Warrior Ambassadors may connect with patients, and loved ones to offer encouragement, share their personal experiences, and help others feel less alone in their journey.

(A grid of ambassador spotlights)



Connect with a Warrior Ambassador

Looking to talk to someone who has been through a similar Castleman disease journey? Email Madison at madison@cdcn.org to be connected with a Warrior Ambassador who has had to face many of the same challenges that you are facing..

Ready to get involved?

  • Apply to Become a Warrior Ambassador
  • Find a Support Group Near You

Directory of Warrior Ambassadors

Each Warrior Ambassador serves as compassionate listeners, trusted peers, and community advocates, helping raise awareness, amplify patient voices, and connect individuals with helpful information and CDCN resources when appropriate.

Each card includes:

  • Headshot
  • Name
  • Location
  • CD Subtype
  • Talk with me about:
  • Support while making treatment decisions
  • What to expect during treatment
  • Dealing with treatment side effects and quality of life challenges
  • Relationships with family and friends
  • Grief and loss
  • Working or going to school during or after treatment
  • Parenting with chordoma
  • Marital relationships
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