Recordings

2026 Rare Disease Day Community Gathering

Dorottya Laczko presents at this month’s community gathering to share her latest research findings, followed by a Q&A session with Dr. Fajgenbaum. Watch the playback as we come together as a community and celebrate Rare Disease Day.

November 2025 Community Gathering

Watch the recording of our November 2025 Community Gathering to get the latest news from the CDCN and spend together as a community. Dr. Steven Rowe and Bridget Austin join us as guest presenters to discuss our new clinical trial and a blood test that could help diagnosis CD patients faster. Plus, listen to Dr. Fajgenbaum answer questions from the community.

2025 Patient and Loved One Summit Closing Remarks

Watch our closing remarks as we watch a mini patient video together, present our 2025 Warrior Awards and close our the 2025 Patient and Loved One Summit.

2025 Patient and Loved One Summit Expert Panel Q&A Session

Castleman disease experts Sunita Nasta, Luke Chen, Joshua Brandstadter, Sudipto Mukherjee and David Fajgenbaum answer questions directly from participants who attended the 2025 Patient and Loved One Summit.

2025 Patient and Loved One Summit iMCD Breakout Session

Dr. Frits van Rhee and Dr. Luke Chen break down idiopathic multicentric subtype of Castleman disease for both in-person and virtual patients at the 2025 CDCN Patient and Loved One Summit.

2025 Patient and Loved One Summit UCD Breakout Session

Dr. Sunita Nasta breaks down the Unicentric subtype of Castleman disease for both in-person and virtual patients at the 2025 CDCN Patient and Loved One Summit.

2025 Patient and Loved One Summit Oligocentric CD Breakout Session

Dr. Joshua Brandstadter breaks down the subtype of Castleman disease, Oligocentric CD, for both in-person and virtual patients at the 2025 CDCN Patient and Loved One Summit.

2025 Patient and Loved One Summit HHV-8+ MCD Breakout Session

Dr. Ramya Ramaswami breaks down the HHV-8-associated MCD subtype of Castleman disease for both in-person and virtual patients at the 2025 CDCN Patient and Loved One Summit.

2025 Patient and Loved One Summit Research Updates Session

Bridget Austin, Katherine Forsyth and Mike Gonzalez share the most recent research being conducted by the CDCN and CSTL in 2025 to better understand Castleman disease.

2025 Patient and Loved One Summit Castleman Disease Overview Session

Dr. David Fajgenbaum welcomes new patients and loved ones to the 2025 Summit and breaks down the basics of Castleman disease. Learn about how the immune system works and how it changes in a patient with Castleman disease and how to diagnose the different subtypes.

May 2025 Community Gathering

Watch the recording of our May 2025 Community Gathering, where we go over the upcoming events to be aware of, including our annual Patient and Loved One Summit, dive into the details of the iMCD Symptom Burden Scale (ISBUS) study and Dr. Fajgenbaum and Dr. Mukherjee answer questions from the community.

Rare Disease Day 2025 Community Gathering

Watch the recording of our first Community Gathering of 2025, where we celebrated Rare Disease Day and welcomed our new team members. Catch up on what’s ahead this year at the CDCN and learn about the newly identified subtype of Castleman disease, Oligocentric Castleman Disease.