Recordings

Catch up on our past virtual and in-person sessions, featuring insights from the experts and updates in Castleman disease research.

Watch our closing remarks as we watch a mini patient video together, present our 2025 Warrior Awards and close our the 2025 Patient and Loved One Summit.

Castleman disease experts Sunita Nasta, Luke Chen, Joshua Brandstadter, Sudipto Mukherjee and David Fajgenbaum answer questions directly from participants who attended the 2025 Patient and Loved One Summit.

Dr. Frits van Rhee and Dr. Luke Chen break down idiopathic multicentric subtype of Castleman disease for both in-person and virtual patients at the 2025 CDCN Patient and Loved One Summit.

Dr. Sunita Nasta breaks down the Unicentric subtype of Castleman disease for both in-person and virtual patients at the 2025 CDCN Patient and Loved One Summit.

Dr. Joshua Brandstadter breaks down the subtype of Castleman disease, Oligocentric CD, for both in-person and virtual patients at the 2025 CDCN Patient and Loved One Summit.

Dr. Ramya Ramaswami breaks down the HHV-8-associated MCD subtype of Castleman disease for both in-person and virtual patients at the 2025 CDCN Patient and Loved One Summit.

Bridget Austin, Katherine Forsyth and Mike Gonzalez share the most recent research being conducted by the CDCN and CSTL in 2025 to better understand Castleman disease.

Dr. David Fajgenbaum welcomes new patients and loved ones to the 2025 Summit and breaks down the basics of Castleman disease. Learn about how the immune system works and how it changes in a patient with Castleman disease and how to diagnose the different subtypes.

Watch the recording of our May 2025 Community Gathering, where we go over the upcoming events to be aware of, including our annual Patient and Loved One Summit, dive into the details of the iMCD Symptom Burden Scale (ISBUS) study and Dr. Fajgenbaum and Dr. Mukherjee answer questions from the community.

Watch the recording of our first Community Gathering of 2025, where we celebrated Rare Disease Day and welcomed our new team members. Catch up on what’s ahead this year at the CDCN and learn about the newly identified subtype of Castleman disease, Oligocentric Castleman Disease.

View the recording of our October 2024 Community Gathering, featuring a recap of the Patient Summit, ways to get involved, and a research presentation focusing on diagnostic delays for Castleman disease patients.

Dr. Josh Brandstatder, Dr. David Fajgenbaum, Dr. Sunita Nasta and Dr. Kate Lurain respond to questions from patients and loved ones during our 2024 Patient and Loved One Summit.

Dr. David Fajgenbaum shares his thoughts on the current status of idiopathic multicentric Castleman disease research and shares resources for patients and loved ones.

Dr. Josh Brandstatder shares his thoughts on the current status of unicentric Castleman disease research and provides resources for patients and loved ones.

Dr. David Fajgenbaum welcomes patients and loved ones to the 2024 Summit. Dr. Michael Gonzalez and Dr. Melanie Mumau share updates on the current research being conducted by the CDCN.

View the recording of our June 2024 Community Gathering, featuring updates for upcoming community events and campaigns, ways to get involved, and a research presentation from Dr. Luke Chen on his research on Castleman disease in Canada.

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