Patient registries that aggregate de-identified patient medical data are a cornerstone of rare disease research. The ACCELERATE Natural History Study is the first-ever registry for Castleman disease patients and is run through the University of Pennsylvania. Clinical insights into Castleman disease are desperately needed, and the ACCELERATE registry offers the fastest way for the community to gain clinical insights into CD. There is true power in numbers, and every patient enrolled offers the possibility of gaining more accurate clinical information about CD. Please help us by informing your CD patients about the ACCELERATE registry, and share this flyer with your patients so they can learn more.
Patients can learn more and self-enroll into the registry by following the link here. Enrolling takes just 20-30 minutes. Once enrolled, the registry team at Penn will request all medical records and extract the data. All patient information is de-identified and patients give consent to have their medical records requested by Penn on their behalf. If you have any questions, please email accelerate@uphs.upenn.edu or call 215-349-5713.