A rare disease like Castleman can be lonely, so we provide ways for patients, survivors, and co-survivors to connect with one another.
Our virtual support groups are a place where you can come together with others affected by Castleman disease to share experiences, ask questions, find emotional support and build community. Once a month, the groups meet for an hour on Zoom.
What to Expect
- Informal, supportive conversations
- Open to patients and caregivers
- No medical advice provided
- Safe, respectful environment
Find a Support Group Near You
Connect with others who understand your experience.
 Castleman Disease International Advocates Europe Mission and more... We are an informal, international network of committed Castleman Disease advocates who want to promote the networking of patients and loved ones, awareness and knowledge in their respective countries outside of the US.
We believe that by building connections, we can learn from one another, support each other, and work together to improve the lives of people affected by Castleman Disease. | ||
 Castleman Disease Africa Foundation Africa Mission and more...
The Castleman Disease Africa Foundation (CDAF) is a Uganda-based non-profit foundation founded in 2025 by Castleman disease survivor Henry Damulira.
CDAF's vision is a future where people living with Castleman disease across Uganda and Africa have access to quality diagnosis, rehabilitation, treatment, and support services.
Our mission is to reduce misdiagnosis and improve patient outcomes by promoting awareness, strengthening diagnostic capacity, supporting research, and providing patient-centered rehabilitation and psychosocial support services.
CDAF is working toward establishing Africa's first Castleman Disease Patient Registry, increasing awareness among healthcare professionals and communities, supporting patients and caregivers, and fostering partnerships for research and innovation across the continent.
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