A rare disease like Castleman can be lonely, so we provide ways for patients, survivors, and co-survivors to connect with one another.
Our virtual support groups are a place where you can come together with others affected by Castleman disease to share experiences, ask questions, find emotional support and build community. Once a month, the groups meet for an hour on Zoom.
What to Expect
- Informal, supportive conversations
- Open to patients and caregivers
- No medical advice provided
- Safe, respectful environment
Find a Support Group Near You
Connect with others who understand your experience.