In The Media

Check out the CDCN in the news to see how we’re making headlines with breakthrough research, inspiring patient stories, and our mission to find a cure for Castleman disease!

First new subtype of Castleman disease discovered in 45 years

The spectrum of the rare disorder is expanded with discovery, highlighting the importance of collaboration with patient advocates.

Thinking outside the box: A new approach to scientific discovery

Kizzmekia S. Corbett-Helaire, PhD, and David Fajgenbaum, MD, MBA, MSc, have saved literally millions of lives through their innovative discoveries. Here’s how they’re approaching science today.

UPenn's doctor's experience with a rare disease motivated him to use AI to find new treatments for others.

David Fajgenbaum’s rare disease led him to turn to AI.

This Doctor Found His Own Miracle Drug. Now He Wants to Do It for Others

Instead of helping people one at a time, Dr. David Fajgenbaum plans to match patients with existing drugs on a much larger scale.

This Med Student Was Given Last Rites Before Finding a Treatment That Saved His Life. His Method Could Help Millions.

A drug that could potentially save my life was hiding in plain sight.

Could treatments for rare diseases be found in neighborhood pharmacies? New uses for old drugs offer promise.

David Fajgenbaum finds a way to offer hope to patients with new treatment options.

1 Doctor’s Remarkable Journey To Try To Cure His Rare Disease.

Dr. David Fajgenbaum opens up about his remarkable true story and his new memoir in an interview with “GMA.”

The New York Times: His Doctors Were Stumped. Then He Took Over.

David Fajgenbaum takes matters into his own hands to find the cure for his rare disease.

Rare As One

Leveraging the Power of Patients to Accelerate Rare Disease Research.

Doctor with rare disease racing to save his own life.

David Fajgenbaum, a 32-year-old doctor at the University of Pennsylvania, is racing to find a cure for Castleman disease, an illness that’s “like a mix between an autoimmune disease and a cancer.”

Young Doctor Diagnosed With A Death Sentence Hopes To Cure Himself -- Before It's Too Late

David Fajgenbaum’s journey with Castleman disease and the organization he founded to advance research and treatment for Castleman Disease.

A young doctor fights to cure his own rare, deadly disease.

After five near-death experiences, David Fajgenbaum is rallying doctors and scientists to his cause.

Doctor with rare Castleman disease works to find cure.

Dr. David Fajgenbaum helps cure this young patient, Katie Repasky.

Doctor searching for a cure for a rare and deadly disease which he himself suffers from.

Doctor in race against time.