Patient and Loved One Summit

The 2024 Patient and Loved One Summit was July 25-27!

The CDCN’s co-founder, Dr. David Fajgenbaum and the CDCN hosted the patient and loved one community in Philadelphia, PA for education, fun, and friendship.

This event sponsored by Recordati was held in person with a virtual component. Patients and loved ones from around the world came together to learn more about Castleman disease, connect with a supportive community, hear about the latest research from our experts, and get more involved in our collective fight against CD.

This year’s event was hosted at the Study University City Hotel, located at 20 S. 33rd Street in Philadelphia, PA, 19104 and the Saturday group activity was held at Sunset Social on the Cira Green Rooftop.

The agenda for the 2024 Patient and Loved One Summit can be found here. Catch up on what you missed or revisit your favorite moments by watching the recordings linked below!

Congratulations to our 2024 Warrior Award Winners — Penny DeRemer -Patient of the Year and Joe “Butch” Carleno -Loved One of the Year for their continuous efforts and support that they provide for the CDCN patient and loved one community!

Penny DeRemer

Joe Carleno

Please contact Madison Ahearn at madison@castlemannetwork.org with any questions you might have.

 


Castleman Warrior Award Recipients

The Castleman Disease Collaborative Network is pleased to give out Castleman Warrior Awards annually to a Castleman disease patient, loved one, community member, researcher, and physician that has made the greatest impact on the lives of people with Castleman disease.

The winners have all made an impact through either research, patient care, support, advocacy, awareness, or fundraising. They embody the values of the Castleman Disease Collaborative Network of “patient focus, innovation, collaboration, impact with urgency, diversity, and commitment to people.”

The Castleman Disease Collaborative Network (CDCN) held its 10th annual Patient and Loved One Summit on August 11th and 12th, 2023! We had the opportunity to recognize the amazing efforts of individual members of our community Lisa Carleno-Patient of the Year, Stacey Gravina-Loved One of the Year, and Josh Brandstadter-Physician of the Year.

2023 Session Recordings:


The 9th Annual Patient and Loved One Summit was held virtually and over 200 patients and loved ones from around the world registered to attend to learn more about Castleman disease, find support, and hear the latest research updates.

2022 Session Recordings:


The 8th Annual Patient and Loved One Summit was held virtually and over 200 patients and loved ones from around the world registered to attend to learn more about Castleman disease, find support, and hear the latest research updates.

The agenda from the 2021 virtual summit can be found here.

2021 Session Recordings:


The 7th Annual Patient & Loved One Summit was held virtually on August 20-22nd. Over 200 patients and loved ones from around the world registered to attend to learn more about Castleman disease, find support, and hear the latest research updates.

The agenda from the 2020 virtual summit can be found  here.


The 6th Annual Patient & Loved One Summit was held on August 23-24 2019 in Philadelphia, PA! Over 100 patients and loved ones from around the world attended to learn more about Castleman disease, find support, and hear the latest research updates.

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