Castleman Disease and COVID-19

An open letter from the CDCN Scientific Advisory Board to the Castleman community

Open Letter regarding COVID-19

Our Samples. Our Data. Our Cure.

Join the drive to collect 300 samples for life-saving research in 2020!

Our Samples. Our Data. Our Cure.

Creating unprecedented impact

Despite CD being discovered in the 1950s, more progress has been made in the last 7 years than in the previous 60: the first diagnostic and treatment guidelines, first new drug target in 25 years, and much more.

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For us, it's personal.

Co-founded by a patient (who is also a doctor) trying to save his life and others, CDCN works across multiple fronts to fight Castleman disease – a complex, deadly affliction that’s frequently misdiagnosed and difficult to treat.

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The disease we can all help cure

CD is the disease that we can all help cure because we take an innovative approach, have a relentless leadership team, and have already made unprecedented progress.

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A revolutionary approach to fighting rare diseases

We’re proud to partner with the Chan Zuckerberg Initiative (CZI) to share our innovative, patient-led model.

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The Castleman Disease Collaborative Network (CDCN) is a global organization dedicated to accelerating research and treatment for Castleman disease (CD), a disease at the intersection of cancer and autoimmunity.

Relentless Leadership

A sense of urgency from day one.

When the co-founder is a patient and the disease can be deadly, there is no time to waste. The CDCN team is incredibly focused on finding what works and quickly discarding what doesn’t. And it shows in the results.

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Innovative Approach

Finding the questions before looking for answers.

Instead of finding and funding an ongoing study, we work to find out what needs answering, recruit the best scientists to find the answers, and fund the study we need. It’s an approach that has pulled together a network of experts from across the globe.

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Unprecedented Progress

Doing in a year what often takes a decade.

By turning the old model on its head and building a truly unique approach, we have made incredible progress in a very short amount of time. But there is still so much more to do.

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Join our network of patients & loved ones and physicians & researchers

Castleman disease is a journey for patients and all those they love that begins with a difficult diagnosis followed by finding a specialist, choosing a treatment, recovering, and surviving.

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