CDCN Connect: a private, virtual community for connecting with one another and advancing a cure
About CDCN Connect
Navigating a Castleman Disease diagnosis can feel overwhelming, especially with so many unknowns about this rare disease. But you are not alone. Connecting with others who understand your journey can provide invaluable support, guidance, and strength.
CDCN Connect is a private online community for patients & loved ones that are affected by Castleman disease. CDCN Connect allows patients and loved ones to share experiences, ask questions, and support one another. This space is also a hub for staying informed and playing an active role in advancing research toward a cure.
As a member, you’ll have access to:
- Discussion Groups tailored to your connection to Castleman Disease.
- A Resource Library with the latest research, educational materials, and treatment information.
- A Member Directory to find and connect you with others in the community.
- Private Chat Spaces for open and supportive conversations.
- An Events Page to stay updated on upcoming meetings and webinars.
- Direct Messaging for one-on-one connections.
- The Warrior Flex Photo Wall to celebrate strength and resilience
The CDCN team checks in daily to provide updates, answer questions, and ensure this space remains a valuable resource for all members.
If you’re interested in joining, reach out to our Director of Programming and Operations, Madison Ahearn at madison@castlemannetwork.org for an invite. We’d love to welcome you into the community! 💙 You must be a member of the CDCN patient and loved one community to join CDCN Connect.
Quick Links
- Become a member of the CDCN network to be eligible to join CDCN Connect