I found out back in 2014 that I had castleman disease. I had a tumor in between my right lung and spine. I had surgery to remove it and they did test on the tumor and that’s when I found out I had castleman disease. My doctor at that time told me he didn’t know anything about the disease and other the other doctors that I have don’t either. I have been doing research on the disease an
d discovering I have a lot of the symptoms. Just would like to learn more and help others that are fighting the disease and myself.
